As per our constitution WSI is managed on behalf of its members by up to eight members who are elected at each year’s annual general meeting. From time to time the committee also welcomes other members to take part in the business of the committee and to attend meetings as associate committee members. This has the advantage of providing new perspectives as well as providing extra pairs of hands for the work of the committee. Its also provides an opportunity for members of the association to familiarise themselves with the work of committee without committing to full time involvement. Click on images for more details.
Constitution
WSI Mission Statement
The Williams Syndrome Ireland ( WSI ) was founded in 1987. Its mission is to promote the general welfare of individuals with Williams Syndrome, to provide practical help and support to them and their families and to enable them to reach their full potential through their strengths and interests.
The associations constitution provides further details on the subsidiary objectives of the organisation; See links at the bottom of the page.


Here to serve WSI families
WSI Activities
WSI provides support and advice the on Williams Syndrome to individuals and families affected by WS. We enable individuals, families and professionals to make contact with other people affected by WS and who have already experienced the many challenges posed by WS. Annually WSI organises a range of events for our members and you can use these events to tap into the knowledge and experience for every stage of your child’s development.
Click link below for link to annual Events:
Registered Charity
WSI History
The Williams Syndrome Ireland ( WSI ) was founded in 1987 with two family members and held it’s first Annual General Meeting in September 1989. It became a Registered Charity in 1991- Charity Number RCN 20024123. It is now run by a committee of up to 8 people that is elected each year at the Annual General Meeting. This committee consists of a Chairperson, Secretary and Treasurer as well as a number of committee members – usually all parents or close relatives of WS children or adults. The committee meets 4 or 5 times each year.

50
Volunteer
100
WSI Families
3500€
Donated
WSI Committee
Keeping us going!
Committee Member
My name is Lyndsey McMahon and I’m from Co Meath. I’m mam to twins, Liam and Lauren as well as another younger boy, Seán. Lauren was diagnosed with Williams syndrome in 2022 shortly after birth. I work with adults with additional needs through exercise as my job and have done since 2018
Committee Member
Originally from Cavan, Living in Cork Mum to Katie with WS and 2 younger boys Tadhg & Dsrragh . Katie was diagnosed at 11 months in early 2013. The family are members since late 2013. It has been a great benefit to be involved with WSI to ensure support for Katie and us all. On […]
Chairman
Stephen lives in Westmeath but originally hails from Dublin. He was elected as Chairman in 2017 and previously served as a committee member of WSI in the 1990s. Stephen has a long association with the association and became involved after his daughter Rosanna was diagnosed with Williams Syndrome in 1996. In addition to his role […]
Associate Committee Member
Brian Ahern is from Cork and is affected by Williams Syndrome. Brian is a brilliant role model for anyone with WS and brings a unique and valuable perspective to our Committee. Like many people with WS he is a gifted musician.
Associate Committee Member
Phil lives in County Limerick and is an associate member of the committee having served on the full committee for many years. Phil joined WSI following the birth of her daughter Ashleigh who has Williams Syndrome.
Committee Member
Pauline hails from Cork and has been a member of WSI since 2001 following the diagnosis of her daughter Annmarie with Williams Syndrome. She has served as a committee member since 2006 and has taken the lead in organising many of our social events which provide great support to families affected by WS. Latterly Pauline […]
Secretary
My name is Linda Kane. I joined the Williams Syndrome Ireland committee in November 2019 and was elected secretary in November 2020. I live in Dublin with my husband and two daughters (Abby and Izzy). My youngest daughter Izzy has Williams Syndrome and was diagnosed in December 2017 when she was 6 months old. In […]
Associate Committee Member
Tom lives in Dublin and is an associate member of the committee. Tom joined WSI after his daughter, Patricia, was diagnosed with WS around 1995 when she was six years old. Tom currently provides a support role to the Committee focusing on areas such as Governance and IT and produces the WSI Newsletter a number […]
Committee Member
Helena has been a member of the Committee for a number of years and hails from Kildare. Her daughter Katie who has Williams Syndrome is a regular camper at our Junior Camp in Limerick. Helena is the Committee lead focusing on primary school age members affected WS.
Treasurer
Dearbhail is originally from Co. Cork and now lives in Dublin and is mum to Ciarán, who was diagnosed with Williams Syndrome aged 6 in 2013, and Fiachra. Her hope for the WSI is provide a community of peers for Ciarán and provide support for him, parents and siblings. As well as taking on the […]
WSI Official Documents
Section contains official WSI annual reports & governance documents:
- Chairman’s Report for the Year
- Financial Report for the Year
- WSI Constitution
- Any other Report that’s Appropriate
WSI Annual Reports

1 March 2025
WSI Annual Financial Report
- Version 0.1
- To be supplied

WSI Governance Documents




24 Feburary 2024
- WSI Committee
- Version 2.0

30 August 2019
WSI General Risk Management Policy
- Under Review
- by WSI Committee

